With the slogan “We Are Not Alone”, the Bangladesh Thalassemia Patients and Parents’ Welfare Association began its journey on December 25, 2021. Over the past four years, the organization has conducted a range of impactful programs, including thalassemia carrier screening and awareness campaigns, patient and parent meetups, medical consultation sessions with specialists, Zakat-based financial assistance, distribution of winter clothing, as well as TV appearances and online awareness initiatives.
Our activities include-
Thalassemia Patients and Parents’ Meet-up: Since our journey began in 2021, we have been organizing meet-up programs every year. In addition to thalassemia patients and their families, doctors, researchers and experts, representatives of pharmaceutical companies, diagnostic labs, blood banks and treatment centers, thalassemia activists and well-wishers, and many others participate in these programs.
Thalassemia Carrier Screening and Awareness: We have been organizing awareness seminars and carrier detection (through hemoglobin electrophoresis test) programs among students of various educational institutions and with various professionals in offices in Dhaka and outside Dhaka.
Zakat, Donations and Winter Clothes Distribution: Zakat and donations are collected and financial assistance is provided to poor thalassemia patients for regular treatment or to make them self-reliant. In addition, winter clothes are distributed among patients during winter and new clothes are given to child patients and their mothers during Eid.
Medical consultation program with thalassemia or hematologists: Programs are regularly organized online with expert doctors to solve various problems of thalassemia patients and improve their quality of life. Such programs are organized so that patients living outside Dhaka from all over Bangladesh can easily get advice from experienced hematologists in Dhaka. In these programs, patients and their guardians get various advice on the disease through direct question and answers